Welcome to The Duchenne Registry!
If you're joining The Duchenne Registry for the first time, click Join The Registry below to get started. Please scroll down for additional options, including how to regain access to a historic account or how to check on your status in The Registry. Para español, consulte la información en español a continuación.
For returning participants, you can use the mobile app or sign in online using this web url (copy/paste): https://ppmd-v5.npa.threadresearch.com/participants/web/755925/5f52e39e-afc7-4e58-8c31-624ed4ec963a/country/56efc010-7fde-11ea-b261-0ebb23c5d88c/language/ca0af64b-9a40-11e9-8a9c-12046093208c/version/50bdc9e2-b58f-4e05-be56-a1e5fe55a123/join
¿Hablas español?
Si desea utilizar la versión en español del Registro de Duchenne, envíe un correo electrónico con la palabra "Registro en español" a coordinator@duchenneregistry.org.
Unsure if you are already participating in the Registry?
If you would like to check whether you already have an account, please email coordinator@duchenneregistry.org or call 888-520-8675 option 2.
Looking to learn more about The Registry?
Check out our the Registry home page at duchenneregistry.org, where you can learn more about the importance of joining, how the Registry works, and more.